A Different Take on Anticipatory Grief

I first heard the term anticipatory grief when Francis and I made the decision to enter into hospice care. We had AWESOME people who worked with us. For those of you who don’t know what it is, Wikipedia defines it as “a grief reaction that occurs before the impending…death of someone close due to illness.”

While I didn’t know that what I had been experiencing for months could be defined as anticipatory grief, I’m sure that’s what it was. And although I’m no researcher or psychologist, I think the Wikipedia definition is a bit too narrow.

I would argue that anticipatory grief doesn’t necessarily end with the death of a loved one, it’s just takes on a new form.

August 25, 2017. It’s been ten years since I walked down the aisle to a smiling, misty-eyed Francis. That day was incredible!

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Most people told us before the wedding that we probably wouldn’t remember the wedding at all.  It was the reception you would remember. So we planned for a bang up good time at the reception. But those people were wrong.

The wedding ceremony was incredibly special, and the definite highlight of the day for us. Don’t get me wrong, the reception was still fantastic. The ceremony was just so much more special to us.

I took some time to look through our wedding album. It’s been sitting on a shelf for the majority of the last ten years, and especially the last four since Francis’s death. The smiles, the candid moments, our loved ones there to celebrate with us, it flooded me with emotion and connected me back to the emotional high of the day.

Like all weddings, there were tears, but they were tears of joy. Who would have ever imagined the tears shed over our tenth anniversary would be so different?

Anniversaries are hard for many who grieve the death of a loved one. My wedding anniversary is especially difficult for me. It’s the one day that was completely ours. That day was all about us – our love, our relationship, our forever. Everyone else’s presence was a gift on that day, but didn’t change our purpose or our focus. It’s the day the two MEs became one WE.

Now we is just me.

As my wedding anniversary (and any other anniversary throughout the year) approached, my grief became more intense and the thought of the approaching day was more acutely painful. Surprisingly, the anniversary day itself isn’t painful at all.

This is why I believe anticipatory grief lingers long beyond the death of a loved one.

One thing I’ve learned is that grief won’t go away. It’s a certainty that nearly every human walking this earth has experienced or will experience grief. I just didn’t expect the anticipation of an anniversary event would be equally painful.

Here’s another thing I’ve learned, anticipatory grief can be avoided, unlike the rest of the healthy grief someone should experience fully.

It comes down to simple human forgetfulness. We all forget important dates – even those of us tethered to our calendars on our phones. Life happens and things get lost in the shuffle.

The kids usually start school the week of our wedding anniversary. There’s excitement and anxiety and errands and school supplies to buy and last minute family trips.

And last year I nearly forgot that the 25th wasn’t just another day, until someone sent me an email wishing me a happy anniversary on the 24th. It’s quite possible I would have forgotten had it not been for that email.

I’ve wondered often since Francis died whether I’d rather remember or forget those dates. If I’m honest, I’d prefer to forget them all until the actual day itself, and even then I’d only like to remember the joyful ones. Forgetting an anniversary frees me from the bonus days of anticipatory grief and pain and the painful days altogether.

I haven’t shared this personal preference to forget because I have worried too much that other people will judge me negatively for the way I want to experience a grief journey that is MINE and no one else’s. Maybe I just don’t care as much what other people think of the way I grieve, after all, they can’t know how I feel.

I can’t and won’t tell people to stop emailing/texting me on those dates. That may be part of their grief journey. I love knowing that they are remembering those important dates because of Francis. I appreciate the love and support that friends and family extend to me even when I may not want it. That’s what is important, not what others think about the way I grieve, but that I have amazing people around me who just show up no matter what. What I will tell those people is that they probably shouldn’t expect to hear anything from me. I may be unplugged. I may check in after. Or I may not.

This anniversary is more happy than sad. I grieve today for the dreams that we had for a long and happy marriage full of excitement and adventure. I grieve the things we planned to do together but failed to accomplish in the 5.75 years of marriage we had.

But it’s more fun to think about and remember the excitement and adventure we managed cram into that time. We traveled to faraway and exotic places, skied in the desert and in the mountains, explored King Tut’s tomb, snorkeled reefs in the Caribbean, golfed, bought houses and cars, adopted pets and brought two strong-willed, intelligent children into this world. Oh the wonders we were blessed to experience together! The timeline was short, but I think we did an exceptional job, if I do say so myself.

Ten years. Next year I will have been a widow for longer than I was a wife. I’m sure that will be hard and I’m hoping I can forget that day for a change.

If I manage to forget that day or any other significant anniversary, the fact of the matter is that I can’t forget Francis. I see him in the way Couper walks and in Riley’s crooked smirk. I hear him when people use phrases like, “to make a long story short” and “all things considered.” The little everyday idiosyncrasies that were quintessentially Francis are impossible to forget and are ever-present, and these few here don’t even scratch the surface of the way the memory of him lives on.

I pray that when it’s our twentieth wedding anniversary, I’ll still know where my wedding album is. I’ll pull it out, dust it off and let it sit on the coffee table for a few days while I reflect on that beautiful, special, incredible day.

Then, I hope that I’ll be ready to put the album back on the shelf and get back to recognizing the living memory of Francis in everyday life.

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Forgetting to Forget

Admittedly, it’s been a while. About 3.5 years worth of a while. I can’t say whether this is a full reentry or just a for now post.

Today is the anniversary of Francis’ death.  Four years ago, on a foggy morning in Tallahassee, Florida I told my son that his dad was going to die.  I said my final good-byes. I let Francis know he could go when he was ready, and that we’d never forget him.

That was his biggest fear – being forgotten.

 

It’s almost laughable to think of the impossibility of that. There’s a massive, gaping hole in our lives where Francis resided. The memories and stories do a pitiful job of filling that void, but without them the pain would be unbearable.

Now I’m seeing the impact on the little lives that orbit mine. The children’s art therapist from hospice was great in working with Couper when he was just three years old.  She advised me that I would need to revisit grief support for the kids; that as their cognitive development progressed so would their processing of their father’s death.

At 2-years-old, Couper had quite the temper.  He didn’t like to be told “no” (who does?). He went through a particularly naughty period where he had to spend a couple minutes in timeout for hitting. When I would position him on the stool, he would scream in my face (at the top of his little lungs) over and over again.

I would calmly explain that he couldn’t do that and give him a warning that if he did it again I would take away a toy. I started with the iPad, moved to the trains, then the cars, then the Legos. At that point, I was worried that we didn’t have any more toy options for the day and it was still morning.

It was a difficult day, week and month to break the screaming habit, but we survived. He learned healthier coping techniques and we moved on to different parenting challenges. He still has that temper, but has learned to managed it much better than he did at the age of two.

My kids are awesome. Somehow I’ve managed to raise two kind, loving, well-adjusted, well-mannered children despite being a solo parent. Much thanks is due to loving and caring family and friends who support me in my parenting and them in their growth and learning.

Recently, though, Couper appears to be struggling with his temper/anger. His kindergarten teacher is a big proponent of mindfulness practice in both her classroom and her own life. I can’t explain how thankful I am for this in Couper’s life. I am certain that it is growing his emotional intelligence and helping him identify his own strong emotions.

And here’s the truth, my son is angry and negative. He knows it and I know it, and now others are beginning to see it where they didn’t before. It’s not constant throughout the day, and it isn’t necessarily daily. And the worst part is that I don’t know how to help him.

Parenting is hard. Throw a death of a parent into the mix and it just gets harder. Life shouldn’t be that way, but it is. I try desperately to keep a positive outlook on life. I clung to positivity in Francis’s illness and even since his death, but I don’t know how to inspire that in my beloved little 6- almost 7-year-old.

There are resources here locally for grieving children, and I’ve already gotten the ball rolling toward getting the help I need. I don’t know why I feel compelled to write this except to say that if you’re struggling or your children are, you or they don’t have to do so alone. No matter how lonely I feel, I know I’m not the only woman who has been a solo mom to two children because cancer killed her husband.

I hesitated to write about this because: 1.) I want to protect my children, and 2.) It isn’t very happy or pretty. But I find it exhausting to be in a world where we try to hide the ugliness of everyday life. Where we are desperate to maintain the perfect “social media-worthy” life despite the painful realities unfolding around us. But, life isn’t perfect. I’m not perfect and neither are my children. I’m guessing those of you reading this can relate (don’t worry, I won’t call you out on social media).

Where perfection becomes dangerous is when I take my little ones by the hand and pretend they aren’t hurting. When I fail to recognize my short-comings as a parent. When I think I can figure it out by myself.

Maybe more than anything today, by remembering to remember Francis on this anniversary I can help myself and my precious little kiddos grieve in a healthier way – with all those wonderful, loving and caring people around us who might just know better than I do.

Escaping reality and finding purpose

By all accounts, my 2013 has been pretty awful.  As I approach Thanksgiving, I begin to reflect on those things for which I am grateful.

I realize that looking back I can find little pockets of joy that were preserved in the worst months of the first half of the year.  More recently, those pockets are beginning to look more and more like full pairs of trousers.  There may be some ratty cuffs and torn knees, but my joy seems to be growing as time passes.

I knew this would happen, I just wasn’t sure how quickly.  Everyone says, “Give yourself a year.”  Many say, “Some days the grief is crippling.”

I’m happy to report that I don’t feel like I need a year, nor do I feel that I’ve been crippled by guilt.

Now, it took a lot of courage to write that.  Before you go judging me, I will assure you that I miss Francis terribly.  There is a hole in my heart that will never be filled.

However, what I didn’t realize until recently is that my life began to move on as soon as the hospice nurse and chaplain walked into the room to join me next to Francis’s body.

Time stops for no one, not even a grieving widow.  It may march a little slower at times, but it also may speed right by without so much as a wave.

Everyone grieves differently.  Everyone has a very different experience.  But my grief is my own, and no one should judge someone else’s grief experience by a yard stick that is their own.

My counselor often reminds me that grief has no timeline.  She’s correct.  Some may never move on from the death of a loved one.  Others may not even seem fazed by it.

One thing I am thankful for is that I am blessed with two amazing little kiddos.  They give me reason to get up in the morning – albeit earlier than I would like – and plenty of opportunity for gut-busting laughter (when they aren’t too busy making me their referee).  Our children are terribly ticklish.  I need only hear that tickle-induced laughter to feel better about my day and the days to come.

One other experience for which I am so grateful happened just a little over a month ago.

When our family returned from Houston, Francis and I had many conversations about what my life may look like after he was gone.  He was insistent that I find a way to get back in touch with who I am.

Over the course of nearly three years, I had redefined my life.  I am a woman who found great pleasure in my identity as a successful and hard-working political insider.  I worked long hours and had some incredible opportunities that came to an abrupt end with Couper’s birth.  Much of that change was a choice, though some was unexpected.  It has all been worth it.

I went back to work after maternity leave.  But just two months later, I found myself in an SUV packed to the gills, with a nine-month-old who hated his carseat and two completely freaked-out cats.  We were headed to our new home in Tallahassee to start a new chapter in our family’s life.  I found out I was pregnant seven months later, and six months after that Francis’s health began to deteriorate rapidly.

I write all this not to complain but to explain why there was an urgency to Francis’s request.  He was making sure that I was taken care of after he was gone, and that I was in a position to take care of that which we loved most – Couper and Riley.  I had been a caregiver for so long that I needed a break.  He may have recognized this more clearly than I did, but deep down I knew I needed to refresh after such a long, difficult period of caregiving.

His request was specific – go take a trip, without the kids.  Take some girlfriends along, and get back in touch with the part of myself that had to be tucked away due to life’s circumstances.

So I did.  I went to Florence with three friends.  Not the Florence in SC, AL, AZ, WV, KY, WI, or MI (sorry if I left any others out).  I went to Florence, Italy.

I was there for about 40 hours in 2004 and fell in love with what little I had seen.  I knew I had missed a LOT, and have always wanted to go back.  I thought this was as good a time as any, so I took the plunge.

There was no agenda or scheduled itinerary (other than an AMAZING tour of Amedei Tuscany Chocolate Factory – seriously, go).  It was the best way to do Florence.  We wandered the city (miles of walking each day).  We embraced the Italian way of eating long and delicious meals.  I didn’t do any speed walking and didn’t eat a single meal interrupted by urgent runs to the “potty” or small hands reaching onto my plate for a bite or twenty.

It was truly what I needed.  It was also even better than I could have imagined it would be.

While Francis wasn’t there, he was the reason that I was.  He was present in all that we did and perpetually on my mind.

The best part wasn’t finding amazing art, food, fresh air, or chocolate.  The best part was that I found myself there.  I found small pieces of what makes me who I am in places all over Florence and through building closer friendships with some amazing women in my life.

What I found was the me I am afraid I would have lost completely if I waited much longer to fulfill Francis’s wish.  And thankfully, that is the me who flew home.

I left the worst parts of my widowhood – bitterness, anger, frustration, short temper, and impatience – stranded in transit like a much less pleasant Viktor Navorski in the movie The Terminal.

I hope that me doesn’t ever find it’s way home.  This me is a much better and more content woman and mother.

The trip also inspired me to help other women find the same renewal that I did.  The seed Francis planted, over six months ago now with his request that I make a fresh new start, has grown into a full grown dream.

Francis and I merely discussed an inspiring idea.  I shared this crazy idea with a fellow young cancer widow.  From there, it’s developed a life of its own and inspired other fantastic people to join us in our efforts.

Now, thanks to the dedication and inspiration of that amazing group of people who have become both my cheerleaders and teammates we’ll see that dream become a reality.  I’ve found my new purpose – one that is far more worthwhile and rewarding than my career path to date.

I will gladly pour my blood, sweat, and tears into this dream to see other young cancer widows refresh, renew, and restart their lives after the death of their spouse.  It’s thoroughly worth it.

Stay tuned for a more details in the coming weeks.  In the meantime, if you have questions/comments or want to discuss this endeavor in more detail, feel free to contact me through the contact link.

I will close by saying that I am happy with where I am.  I have many people to thank for that, including you, but I am more thankful for the value that falling in love with Francis has added to my life.  Without him, I wouldn’t have Couper and Riley or all the other amazing adventures we shared.  And now, thanks to him I have had an amazing new adventure of my own that has allowed me to begin to feel growing excitement for the adventures I will have in the future.

Becoming a skeptic

Doctors don’t know everything.  Just ask one – gently.  I imagine your doctor will tell you in one way or another that doctors are not all-knowing.  If he or she claims to be the exception to the rule, find a new doctor – immediately.

The idea for this post has been bouncing around in my head for a long time.  I was inspired to put it into writing this past week during a great lunch with my friend, Paige.  We talked about the shortcomings of the medical field and the hope each patient has that his or her doctor is looking out for the patient’s best interest.

We discussed how our culture teaches us to respect authority.  In addition, we put a high value on education.  The more education one gets, the smarter one must be.  Doctors find themselves somewhere near the top of the educated heap.  The rest of us fall somewhere below that level, especially in the field of medical education.  No, Google and WebMD aren’t good substitutes for a medical degree.

When these two facts are combined, many well meaning people take a back seat in their own healthcare out of respect for the doctor.  After all, they know more than we do.

Unfortunately, our healthcare system has just the opposite approach.  The system expects us to be in the driver’s seat of our healthcare decisions, not our doctor.  The doctor is more like the navigation system, it’s up to the driver to accelerate, brake, or turn and any mistakes that navigation system makes don’t affect it, they affect the driver.

Francis and I learned this lesson the hard way, but the important part is that we did learn it.  We learned that the most important thing you can do in a consultation with your doctor is to be a skeptic.  Don’t be afraid of skepticism because, frankly, it could save your life.

I’m not advocating for patients to be know-it-alls.  No one likes a know-it-all.

What I am saying is that we all need to get back in touch with our inner three-year-old when it comes to our doctors.  We need to ask, “Why?”  Over, and over, and over, and over, and…you get the point.

I’m raising a three-year-old.  I hear this question a lot during my day.  I suspect it should be as commonplace in a doctor’s office as it is in my home.  I also imagine that, in the course of a day, patients don’t ask that of their doctors as often as my son asks me that question in the car to and from preschool.

Everything your doctor recommends should be met with a three-year-old’s sense of curiosity and eagerness to learn.  After all, it’s your body and your doctor doesn’t have to live with it.

While stretching yourself to be a skeptic, don’t be afraid to ask for a second opinion after a diagnosis.  As a matter of fact, that should be your first instinct.  Even if that doctor giving the second opinion arrives at the same diagnosis and course of treatment, consider it a learning experience.  Each time you talk about your medical situation you learn something new.  Embrace that knowledge and don’t be afraid to be a skeptic with them either.  The doctor giving the second opinion is probably expecting it.

Then, ask for a third if the first two doctors don’t agree.  And this is important, tell your doctor what you’re doing.  Don’t go behind their back and sneak off to another doctor.  You’re not cheating on them.  Your first doctor could have valuable input about who to see.  Even better, they could be willing to call and discuss the case with the other doctor.

If your doctor gets angry or defensive, that’s a really bad sign.  Doctors should be taking the lead from you.  The best doctors gave Francis referrals to other doctors for second opinions and then called and discussed the case with them.

Two heads are better than one, and three are probably even better.  There is a reason that places like Mayo Clinic and MD Anderson operate with a team approach to diagnosis and treatment.  Much can be gained by sharing ideas, debating diagnoses, and challenging treatment options.

We should question everything we are told until we have a complete understanding.  We should be asking “why” until our curiosity is quenched.

Take a notebook to every appointment with all of the questions you want answered, no matter how mundane the question seems to you.  Don’t be embarrassed to ask anything.  Don’t let them rush you out of the office before you’ve asked every question in your notebook.

After waiting over three hours past our appointment time on our first visit to MD Anderson, we were told by another patient that we should relax and stop watching the clock.  The appointment time there is merely a suggestion.  The doctors there take the time needed to answer every question a patient has.  Be thankful if your doctor does the same with you, and try to be patient in the waiting room.  I admit that I still struggle with being patient, but I do expect them to make time for me to be a skeptic.

I’ll close by driving this point home, be sure to take your inner three-year-old to the doctor’s office with you.  Then go ahead and set him or her free to unleash a barrage of whys.  A good doctor will appreciate it.

The concept of loss

I’ve recently taken a hiatus from writing here.  It wasn’t intentional, and there were many times that I wished I had the inspiration to write when I didn’t.

I imagine that this second phase of grieving (post-numbness) is to blame for much of the reason I haven’t written.

During this hiatus, I’ve come to learn another truth about grieving – grief isn’t linear.  In the two and a half months since Francis passed away, I honestly can say that I have experienced each of the five stages of grief.

But, experiencing each of them does not mean my grief journey is even close to being complete.  I have jumped from stage to stage, circled back, tried a few over, then moved on, only to find myself right back where I started.

Just a week ago I was sitting on the couch, after the children had gone to bed for the night, wondering if my life was what it seemed.  Was Francis really gone?  Has this new normal truly become my normal?  Was I really back to denial again?

My thoughts tumbled around in my head until I found myself grappling with the concept of loss.  I have told many, many people, “I recently lost my husband.”  Lost?  Really?

I began to get angry.  I didn’t lose my husband.  I haven’t misplaced him.  He’s not missing.  He isn’t coming home.  My children won’t really know their father.

My husband died.  He is dead.

This looks so stark (it sounds that way too), and remains painful.  Perhaps I wasn’t able to say those words – died and dead – shortly after Francis passed away because it was just too painful on top of all the other things I was feeling at the time.  But now, I need to begin to deal with that painful reality even when I can’t say it out loud.

I need to recognize that sometimes it will be hard for me to face exactly what happened in this grief process, and I’ll need to resort to the safe territory of “loss.”  I can candy coat my existence just the same way I can candy coat the language.  That’s ok, but I can’t allow myself to get too comfortable there.

By continuing to think of this as a loss, I feel as though I’m minimizing the situation and failing to realize the permanence of death and the void that has been left in my life because Francis is now gone.

Only if I willingly admit my painful reality will I be able to face it and move forward on my own without being crippled by the pain of Francis’s illness and death.  After all, I have no choice but to take up the responsibilities of leading my family forward from this horrible valley.

My children and I will be better off if I am willing to face those things that are painful and work through them.  It is hard work, and I’m not saying that everyone is ready to chuck the word “loss” from their grief process, but it’s the work that I have to do right now.  Work I must face as willingly as possible in the days, weeks, and months ahead.

I know we’ll be alright.  I’ve learned a lot about myself over the last 16 months, and I am confident that I can and will fight for what is most important in my world.  This helps me know that I will emerge from this year and this intense pain.

I may emerge with many a battle scar, but one day I will look at those scars as beautiful reminders of the love that filled my life.  Love that dreamed and hoped for the future.  Love that created two amazing little children.  A legacy of love that will live on in me and our children.

I had every intention to write weekly.  I promise I won’t stop writing, but I may take a break here or there while I wait for something to inspire me or for my thoughts to come together into a coherent post.

Again, I thank you for continuing to read these posts and for your continued support and prayers.

This fog called grief

For those of you interested in getting a better understanding of the depths of grief, I will do my best to describe the state of my mind over the last few weeks.  I’d also encourage everyone to read A Grief Observed by C.S. Lewis.  I’ll warn that it isn’t light reading, and within it he plumbs not only the depths of grief, but the depths of his own faith.  C.S. Lewis writes the following in this book:

I thought I could describe a state; make a map of sorrow.  Sorrow, however, turns out to be not a state but a process.  It needs not a map but a history…There is something new to be chronicled every day.  Grief is like a long valley, a winding valley where any bend may reveal a totally new landscape.  As I’ve already noted, not every bend does.  Sometimes the surprise is the opposite one; you are presented with exactly the same sort of country you thought you had left behind miles ago.  That is when you wonder whether the valley isn’t a circular trench.

If I’m honest, I had MANY misconceptions about grief.  I may still have some.  To me it feels as much like I got off one terrifying roller coaster called Cancer just to be forced onto another unexpected and very different one called Grief.

I have missed Francis more deeply today than I have for a couple days.  There’s no rhyme or reason as to why I feel that way, I just do.  I also have no idea what I will feel when I wake up tomorrow morning.  Will it be another day like today or will it be like the last two?  This pain of loss isn’t a straight line, it’s more like a zigzag across the page of my days and weeks.

I also had anticipated that, coming from a family of criers, I would cry a lot daily.  I expected that I would be an emotional basket-case who wouldn’t be able to get out of bed every morning for a number of days, weeks, or (Heaven forbid) months.

What I wasn’t expecting has been just the opposite.  Getting out of bed isn’t a problem most days.  I just seem to move slower than usual, and have to work hard to motivate myself to throw back the covers and move.

It’s what I can only assume C.S. Lewis refers to as the “laziness of grief.”  He even went so far as to say, “I loathe the slightest effort.”  There are some mornings, though, that I do loathe getting out of bed.  I do so because alone with my grief in bed is terribly depressing, and seeing Couper’s and Riley’s little faces makes me feel closer to Francis than I do alone in bed.

This morning also was the first time I’ve cried since the funeral service.  It’s as if I had cried out all the tears I had in me on that morning two weeks ago.  I was all dried up.  Even today didn’t seem to be as much crying as I would have expected after the drought.  It was no more than I’d cry during the Publix Mother’s Day commercial.

My experience of grief has been typical from the literature I’ve read.  I probably should have read about it before I was in the midst of it if I was hoping to be better prepared.

C.S. Lewis explains his experience with grief this way, “At other times it feels like being mildly drunk, or concussed.  There is a sort of invisible blanket between the world and me.  I find it hard to take in what anyone says.  Or perhaps, hard to want to take it in.  It is so uninteresting.”

I can identify with his sentiment completely.  It’s as if the energy I must exert to stay alert enough to carry on normal everyday conversation is so taxing to my body that the easier thing to do is to allow the veil of fog to descend and just nod and smile.  For the first time in my life, I feel as if I have difficulty processing simple conversation.

I find that I actually have to stop someone saying something important and ask them to start over so that I can really focus.  My mom is probably tired of telling me things twice before I actually comprehend her question about things like Couper’s or Riley’s lunch or nap.  It seems so easy a thing to answer, but it feels so difficult for my grief-stricken brain to process.

Everyone says, “Take it easy.  Relax.  Give yourself a break.”  This is great advice.  It’s also frustrating because it is such difficult advice to follow.

For the last 14 months, I was what Francis referred to as the CEO of the family.  I knew or learned the answers to all of the questions about the kids, our routine, Francis, his medical needs, etc.  I made sure we didn’t miss any instructions, medications, or appointments.  I was a cheerleader, instructor, nurse, and advocate in addition to being a wife and mother.

I was a professional woman who found great joy in my job before we moved to Tallahassee.  I then transitioned to being a stay-at-home-mom to Couper first and then caregiver to Francis before welcoming Riley to our family.  It wasn’t my first choice, but it was what was right for our family and me at the time.

I miss working.  It is no secret, and Francis and I discussed it with each other a lot.  If things had been different, I would have gone back to work well before I was pregnant with Riley and Francis was diagnosed with cancer.

Because it wasn’t the right decision for our family, I didn’t go back to work.  Instead, I poured my skills into caring for our children and Francis, and managing all things Gibbs.  I turned that role into my job for more than a year.  Now it’s as if I’ve been let go from that job.

I feel like I shouldn’t be so foggy.  I kept things together at work and at home.  I feel like I should be able to pull it together now and function like I would normally, grief notwithstanding.  I get frustrated and irritated with myself that I can’t do so.

But like C.S. Lewis, I’m feeling mildly drunk or concussed on a regular basis and there’s nothing I can do to change that.  And, just when I think I’m through that particular part of the journey, I walk right back into the fog.

I’m sure that the deep loss I feel today is not the last time I will feel this way.  I know I will feel the fog of grief for many more days, weeks, months, and possibly years.  It’s yet another stop on this roller coaster ride of grief.  It may be different than I expected, but it’s all part of the ride.

Obituary

Several people have asked me about Francis’s obituary. I’ve included it here for those who are interested, and did not see it in the paper or elsewhere online.  My apologies for not sending this out before now.

 

Francis Boll Gibbs, 40, of Tallahassee, FL, passed away at his home on May 17, 2013.

He was born, 26 December 1972, at Jacksonville, FL, to Frances May Wentz and George Williams Gibbs, III.

He was reared at Fernandina Beach, FL, and graduated from Fernandina Beach High School in 1991.  He earned both his B.S. and his J.D. degrees at the University of Florida, Gainesville, FL, and was admitted to The Florida Bar in 1999.

Francis’ career included practicing law at Fernandina Beach, FL, serving as Legislative Counsel for Congressman Ander Crenshaw and as Chief of Staff for Congressman Connie Mack, IV, at Washington, DC.  It culminated with his service as Chief of Staff for the Florida Department of Transportation at Tallahassee, FL.

Francis was a seasoned traveler from his childhood. He was an avid golfer and tennis player from his youth.  He enjoyed flying and earned his private pilot’s license.

Francis was a member of National Society Sons of the American Revolution, through his mother.  He took pride that several of his paternal ancestors were Florida residents before statehood.

Francis is survived by his widow, LeAnne Renee (Holdman) Gibbs, his son, Couper Marshall Gibbs, and his daughter, Riley Ingraham Gibbs, Tallahassee, FL; his mother, Frances Wentz Taber, Tallahassee, FL; his father, George Williams Gibbs, III, and his stepmother, Ann Darden Gibbs, Jacksonville, FL; his sisters, Elizabeth Winslow (Sean) McAuliffe, Tallahassee, FL, Catherine Gibbs Juan, Ann Gibbs Giampetro, and Elizabeth Stockton Gibbs and his brother Robert Kingsley (Melinda) Gibbs, all of Jacksonville, FL; and, three nieces and three nephews.

He was predeceased by his brother, George Williams Gibbs, IV, St. Augustine, FL, and his stepfather, Robert Weiss Taber, Tallahassee, FL.

Francis will be interred, with private graveside services, at Oak Lawn Cemetery, Jacksonville, FL, on May 23, 2013.  A celebration of his life will follow, from 2:00 p.m. to 4:00 p.m., at The Florida Yacht Club, Jacksonville, FL.  All who would like to gather and share memories of Francis are cordially invited to attend the celebration.

In lieu of flowers, please make contributions to the Francis B. Gibbs Memorial Fund.

Life with a semicolon

Sometimes you get a glimpse of a semicolon coming, a few lines farther on, and it is like climbing a steep path through the woods and seeing a wooden bench just at a bend in the road ahead, a place where you can expect to sit for a moment, catching your breath.  ~Lewis Thomas, physician, educator. Dictionary.com Columbia World of Quotations. Columbia University Press, 1996.

I hate semicolons.  Don’t know how to properly use them.  You won’t see many, if any, here in this blog.

I feel as though I’ve just experienced a semicolon in my life.  I hate them there too.

We started this blog as a way to be frank and honest about what has been going on in our lives after Francis’s cancer diagnosis.  I didn’t realize just how fitting the name of this blog would be to my life.

I have said good-bye to and buried my best friend and love of my life.  I now begin to figure out where to go after this hated punctuation mark.

If I’m honest, I’m struggling to catch my breath and see the start of the path ahead.

The chaplain from Big Bend Hospice came for a visit a few weeks ago.  Francis was able to join us briefly before heading to bed and leaving us to chat further.  The chaplain asked me what inspired my honesty.  I told him that I have nothing pretty in my life behind which to hide.  I also told him I was worried about losing that honesty in the midst of my grief.

This blog has been a way for me to share what’s happening to us.  It’s also been an avenue for me to steal a few moments and process my own thoughts.  I hope to be inspired to continue to do this.  I also hope that through the blog I can hold on desperately to the honesty that was helpful to me and to others.

I’ve spoken to people who have been grateful for the words I’ve written, and I’d love to be able to continue to be a help to those who read this.  As I grapple with processing my own loss, I plan to use the blog to write about what my life “post-semicolon” is like.  It will be my own, and without a doubt unique in the path along which it takes me.

To kick it off, I can only reflect briefly on what the first week of grief has been like.

Once Francis passed away and in the days that followed, the house was a flurry of activity.  The drugs, medical equipment, and removal of his body all had to be addressed.

I had gone to the funeral home a few weeks earlier to make preliminary arrangements, so those decisions were already completed.  There were still hundreds of decisions, if not thousands of decisions, to be made.

There were emails, phone calls, texts, Facebook posts, and visitors that had to be faced.  There was a trip to Jacksonville and a service and celebration that had to be planned.

In all of this activity, I didn’t have time to face the fact that Francis was really gone.  I went to bed exhausted and my mind was racing the moment I awoke with all the items I needed to check off my to do list for the day.  The next day was just a repeat of the previous.

Then, the day of the funeral arrived and I couldn’t get motivated to get out of bed.  I felt like throwing up all the way to the cemetery, and felt crushed by my grief at the service with Francis’s coffin sitting before me – a painful reminder that our lives had gone so terribly off track.  I was exhausted by the time the public celebration of Francis’s life was set to begin that afternoon.

Somehow, I was buoyed by the hugs and well-wishes at the celebration of Francis’s life.  That continued into the evening, spent with family and friends.

Since that time, I’ve struggled to really understand this new stage of grieving for a lost spouse.  I move from a sense of denial that Francis is gone to an intense awareness of my aloneness.  I often feel that I should be a crying, broken mess because that’s how I have pictured grief.

Perhaps though, my perception of grieving is a bit off.  More often I feel as if I’m just lost.  I wander through my day without a real clear direction or motivation to do much of anything.

I’m sure the tears will come, perhaps often.  I’m sure there will be tear-free days as well.  There will also be days filled with laughter with Couper an Riley.  All of these things are okay.  I just need to understand that the grief I feel today is all part of the process.

After all, the rest of the path follows this semicolon, and I don’t know what the rest of the journey holds.

 

Fast friends

Mindelynn and I (Sarah) were reflecting on the day, and since we know that many of you were not able to make it to Florida, we asked LeAnne if we could share a little with you.

It seemed ironic to gather under the Spanish moss on a warm, sunny Florida morning for the purpose of bidding farewell to our good friend Francis. The natural beauty of the day almost seemed to mock the grief that was palpable among the family and friends present at Oaklawn Cemetery. But the day was so much more than a day of tears–it was a day pulsating with life, with hope, and even with joy. Not the type of joy you experience when life is good and circumstances are easy, but a deep and abiding joy that comes with knowing how much a person was loved and admired by those who knew him. 

And Francis was–and is–very deeply loved and admired.

He is admired by high school friends who shared amusing anecdotes from the “early years” at the  life celebration held in his honor at the Florida Yacht Club. Some of their memories are captured in this great video. He is highly esteemed by his professional colleagues who celebrated his deep commitment to public service, his integrity in pursuing excellence, and his desire to bring out the best in them. This was evident in the tribute given about him on the floor of the U.S. House of Representatives recently.

And in honoring Francis, his friends and colleagues were also honoring his family, who–even in the midst of their own grief–comforted and served their guests with such grace and kindness that we could not help but feel overwhelmed. To lose a husband, a dad, a son, a brother, an uncle and still summon the strength to show hospitality and compassion to the rest of us is a reflection of the kind of people who are genuine and good. The kind of person Francis was.

One of Francis’ greatest gifts was his ability to befriend practically any one and to find ways to connect with people. So many people testified about his knack for making you feel as if you had known him forever, for being a “fast friend” who could be counted on to make you laugh, play a practical joke on you, talk about what is really important (whether it be Gator football, constitutional rights, etc.), and be there for you when you needed him. His loyalty, his service, his genuine love of people made him great. 

We know that people all over the world have been reading this blog and regardless of the extent to which you know Francis and LeAnne, you undoubtedly are a “fast friend” of theirs. Throughout the day, LeAnne was showing us texts, emails, and Facebook messages that she has received from many of you. Each of them obviously means a lot to her, even if she isn’t able to respond to each and every one, and they will be important for the entire family for years to come. So if you have not yet shared your memories of Francis, please do so by emailing them to couperandriley@gmail.com. 

In leaving Jacksonville, Mindelynn and I will continue honoring Francis by aspiring to be genuine and good friends to those in our lives. We can think of no greater way that you can honor Francis, LeAnne, and their family than by sharing your lives with others. For Francis, this meant sharing some of his life’s great enjoyments: golf, Gators, and good food. 

Whatever is precious to you, don’t hold back. Think of Francis, and share abundantly.

Francis v. The Shadow

Francis is now at peace and pain free.  He passed away peacefully yesterday (Friday) afternoon here at home.  It was perfect the way it happened and I was there by his side to hold his hand and tell him good-bye as he slipped away.  It was just the way he wanted.

Despite the awareness of what was to come, the blow of his death has been intensely painful.

Our family and friends have been wonderful over the hours since his passing, and I can’t speak highly enough of Big Bend Hospice and our nurse and chaplain.

Ryan Fisher, a friend of mine from my DC days in then-Rep. Mike Pence’s office sent me an encouraging email yesterday.  I read it to our chaplain and  nurse after we prayed over Francis.  I’ll share most of it here:

I was reading Psalm 23 in my Bible study this week and felt convicted to share a commentary, by 17th century minister Matthew Henry, with you.

Verse 4 is the famous line by King David that reads, “though I walk through the valley of the shadow of death.”  The commentary I read stated this:

“It is death indeed that is before us; but, it is but the shadow of death; there is no substantial evil in it; the shadow of a serpent will not sting nor the shadow of a sword kill.  It is the valley of the shadow, deep indeed, and dark, and dirty; but the valleys are fruitful, and so is death itself fruitful of comforts to God’s people.”

It’s an angle I had never really considered before…that is, it’s not nearly as scary as the shadow would have you believe because every one of us beats death just as Christ did.  So in the epic battle of Francis v. The Shadow…the safe money is on Francis!

That shadow before Francis was terrifying for both of us.  But, the event was a beautifully exquisite and perfectly reassuring moment that I will always cherish.

Our valley was indeed deep, dark, and dirty.  But, it was so very, very fruitful.

I will miss Francis with every beat of my heart, but I am sustained by the fruit that we gathered and the faith that he is whole again.

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